Saturday, December 13, 2014
Silly Selfies: Little Bro is Eighteen Months Old
Little bro is finally 18 months old. He is 20 pounds 2 oz (4%) and 32 inches long (33%). He continues to struggle with gaining weight even while calorie packing and g-tubing him several times a week. To our surprise he still has to sit rear facing in his car seat. As for feeding him lately, Sadly, he throws up a couple times a week from either burping, coughing, crying too much, feeling full, playing, laughing, or other unknown reasons. It's also frustrating that he refuses to eat sometimes. I think with all the throwing up he has developed another oral aversion. There are days when I just dread feeding him because of the daily battle of him either refusing to eat or drink or throws up. As you can imagine, his eating behaviors causes me a lot of grief. There are days when we both are in tears during meal time. I've found that it calms us down when we listen to classical music or distract him with toys during meal time. Thankfully, he has a g-tube, which we have been relying on lately. I'm grateful for the support from is dietitian and feeding therapist. They are exploring all kinds of ways to help him such as having him tested him for celiac, which came back negative. Next, we are using some antibiotic medication to help him empty his stomach quicker. We will know in a few weeks if that medication will make a difference. As for other developmental milestones, he is delayed socially and not speaking yet. Little brother has extreme separation anxiety from his family members and rarely will interact with anybody outside our intermediate family. I'm hopeful that when little bro attends nursery at church on a regular basis he will be able to develop some healthy social interactions. Additionally, in January he will be doing a music playgroup at Kids on the Move. As far as communication goes, he started signing "more" and grunts while pointing at objects. I am confident that he is understands us and is very intelligent. For example, he will retrieve an item when we ask him to get something for us and seems to understand us even though he cannot communicate to us. We will be following up with a genetics specialist in March to see if he can determine if Zach has any other syndromes.